II. Epidemiology
- Prevalence Developmental Delay in U.S.: 15% of those ages 3-17 years old
- Speech Delay or Language Delay: Up to 19% Prevalence
- Learning Disorder: 8% Prevalence
- Cognitive Disorder: Up to 1.5% Prevalence
III. Precautions
- Early intervention for Developmental Delay is associated with the best outcomes
- However, only 3% of all children received early intervention by age 3 years old (2014, U.S.)
- Public interventions for Developmental Delay peaks at ages 9-12 years old (12.5% of children)
- Parental concern alone may be insufficient screening
- Parental concern alone misses half of children identified with standardized screening tools
- However, screening recommendations varies
- Only AAP recommends routine screening in asymptomatic children (at 9, 18, 24-30 and 48 months)
- USPTF and AAFP recommend screening in symptomatic children (e.g. parental concern)
IV. Indications
- Periodic screening in all children at ages 9, 18, 24 and 30 months
- High risk for Disability
- Low income family
- Parents with limited education
- Parents with mental health concerns
- Single parent family
- Numerous siblings
- Parental unemployment
- Lack of parental concerns
- Other risks
- Perinatal risk factors
- Lower level or maternal education
- Male gender
V. Approach: Survey Parental Concerns
- Use standardized questionnaire (preferred for primary care)
- Example: Ages and Stages Questionnaire (ASQ) for age 4-60 months
- See Tools below for preferred options (ASQ, CDR/IDI or PEDS)
- Use Clinician Trigger Question (Glascoe)
- Ask Parent "Please tell me any concerns you have:"
- Learning
- Developing
- Behaving
- Ask Parent "Please tell me any concerns you have:"
VI. Approach: Developmental Screening Tests for parental concerns
- Behavior (35%)
- Speech and Language (30%)
- Gross motor (less common)
- Fine motor
- Often reflects true developmental problems
- Global concerns
- Needs screening!
VII. Tools
- Developmental Screening Tests ("Does a problem exist?")
- Preferred Options (per AAP, one of the following tests is performed at 9, 18, 24-30 and 48 months)
- Ages and Stages Questionnaire (ASQ): 4-60 months (10 parent completed questions)
- Infant Development Inventory (IDI): 0-18 months
- Child Development Review (CDR): 18-60 months
- Parent's Evaluations of Developmental Status (PEDS): 0-8 years (10 parent completed questions)
- Other options
- Battelle Developmental Inventory
- Bayley Infant Neurodevelopmental Screen
- Brigance Screen
- CAT/CLAMS
- Denver Developmental Screening Test II (not recommended due to low efficacy)
- Minnesota Child Developmental Inventory (replaced by CDR and IDI)
- Preferred Options (per AAP, one of the following tests is performed at 9, 18, 24-30 and 48 months)
-
Autism Screening (per AAP performed at 18 and 24 months)
- Modified Checklist for Autism in Toddlers (M-CHAT-R/F)
- Other tools
- Pervasive Developmental Disorders Screening (PDDST)
- Autism Screening Questionnaire
- Australian Scale for Asperger Syndrome
- Developmental Assessment Tools (abnormal screening)
- Young children under age 3 years: Cognitive Test
- Children 3 years and older: Intelligence Testing
- Behavioral Screening
- Broad-based testing
- Other Tests
- Language and communication
- Sequenced Inventory Communication Development
- Abbreviation: SICD
- Used in 4-48 months
- Sequenced Inventory Communication Development
- Adaptive and social Functioning
- Vineland Adaptive Behavior Scales
- Used in birth to 18 years
- Vineland Adaptive Behavior Scales
- Language and communication
VIII. Resources
- Healthcare Provider Intervention Guidelines (CDC)
- U.S. Early Intervention Programs by State (CDC)
- Developmental Disabilities (CDC)
- Bright Futures Developmental Screening